Meet AnnMarie...

AnnMarie Robertson

Twenty-five years ago, she was born with Cystic Fibrosis (CF), a life threatening hereditary disease that effects the lungs, digestive system and other organs. Recently, her health has declined to the point of frequent hospitalizations and infections, leading the transplant team at the Medical University of South Carolina (MUSC) to consider her for a double lung transplant.

AnnMarie lives with her husband James in the Upstate of South Carolina and the two have been married for over two years. During  this time, they have traveled the three and a half hour trip from Upstate SC to MUSC in Charleston numerous times so that AnnMarie could receive treatment. In November of 2017, her husband had to relinquish his full time job and take a part time job as a Minister of Music at a local church in order to allow the flexibility to provide care and transportation for  AnnMarie as her health continues to decline. Through their faith, they remain hopeful despite the hardships they have faced and are facing. They are fervently praying that the transplant will soon become a reality.

What is CF?

Cystic fibrosis is an inherited disorder that causes severe damage to the lungs, digestive system and other organs in the body.

Cystic fibrosis affects the cells that produce mucus, sweat and digestive juices. These secreted fluids are normally thin and slippery. But in people with cystic fibrosis, a defective gene causes the secretions to become sticky and thick. Instead of acting as a lubricant, the secretions plug up tubes, ducts and passageways, especially in the lungs and pancreas.